It's been 97 days since I've fallen asleep to the sounds of a hospital bed and an IV pump. 97 days since I've had to call and tell someone my name and room number before I'm able to eat. 97 days have passed without me needing to call a nurse for extra treatments. 97 days where no one comes in my room in the middle of the night to check the pulses in my feet and wake me up to ask if I need anything.
All the while it has also been 97 days since I moved from WV to SC! Something if you would have told me 97 days ago, would make me feel ten times better by doing nothing, I'd never believe you!! Yet, here I am feeling like I did in college over 8 years ago before I was this sick.
Now, within those 97 days it's now been 30 days since I've needed to carry around Raymond, my oxygen tank in over 2 years. 30 days without pitty looks and stares from strangers as I walk by. 30 days WALKING around Walmart without needing the scooter. Now, I'm still needing to push a buggy to get around, but I'll take that over the scooter. It's been 30 days without hiring the buzz of my oxygen machine while I'm trying to fall asleep and 30 days without choking myself on an oxygen tube leash!
Of course these two numbers are accompanied by two other numbers my FEV1 (lung function) when I got here 97 days ago was at 17% and now 30 days ago my FEV1 (lung function) was 24%. I can not wait until my next doctors appointment where I'm hoping it has gone up even more.
💥With all of these improvements and numbers I'm throwing around you would think I'm on one of the new Cystic Fibrosis meds or did the steam cell thing, but you'd be wrong. Within the time we've lived at the beach I've done very little different than what I did in WV.
I've added small amounts and I mean maybe 3 drops once a week, of the Detorra "Breathe" blend essential oils, to my bath water. I've upped to amount of hypertonic saline from once a day to twice a day and I've gotten my meds on a better working schedule. The biggest thing I've come to realize that did change, was after about two weeks of living here I slowly stopped taking prescription pain medication. I noticed I wasn't in as much pain here as I was in WV for some odd reason. Which can be a huge reason and explanation as to why the turn around, but I'm not sure to be honest.
💥To me whatever it is the ocean and the salt in the air, magic, be it a miracle, someone watching over me, or whatever it may be I'm so thankful for it! I wish I knew what it was keeping me from getting sick and needing oxygen, but I simply have no clue!
Hoping it just gets better,
Sandi
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