★I wake up each morning just to start coughing for the next 2 hours straight while forcing two treatments in.
★I sit and wonder how many people are afraid to be close to me because of CF and I know its a lot of them
★I take 7 pills with every meal every time I eat, 7 different pills at bedtime and 7 different pills in the morning and 3 different pills in the afternoon.
★I take three Albuteral treatments a day, Two Pulmazymn treatments a day and the newest treatment is Cayston three times a day! With each lasting roughly 3 -45 minutes long!
★I sanitize my entire apartment every day with Lysol.
★I am in the hospital for weeks and sometimes months at a time.
★I have to look at a map of any place we go and see how much walking is involved if I want to go for a trip. Or just force myself to do things even when I know I shouldn't.
★I cry to myself in the shower when I just can't breathe.
★I push people away when I feel sick, picking fights just so they won't have to see me being sick!
★I am hard headed and stubborn and I love it. If not I would not have made it this far.
★I am loud and proud to be! I will talk your ear off about CF and anything really I am a people person!
★Walking from one end of my apt. At the other end, I am hyperventilating needing my oxygen.
★I take 7 pills with every meal every time I eat, 7 different pills at bedtime and 7 different pills in the morning and 3 different pills in the afternoon.
★I take three Albuteral treatments a day, Two Pulmazymn treatments a day and the newest treatment is Cayston three times a day! With each lasting roughly 3 -45 minutes long!
★I sanitize my entire apartment every day with Lysol.
★I am in the hospital for weeks and sometimes months at a time.
★I have to look at a map of any place we go and see how much walking is involved if I want to go for a trip. Or just force myself to do things even when I know I shouldn't.
★I cry to myself in the shower when I just can't breathe.
★I push people away when I feel sick, picking fights just so they won't have to see me being sick!
★I am hard headed and stubborn and I love it. If not I would not have made it this far.
★I am loud and proud to be! I will talk your ear off about CF and anything really I am a people person!
★Walking from one end of my apt. At the other end, I am hyperventilating needing my oxygen.
★I walk to the bathroom and need to hold the wall for standing up from the toilet because I am too weak to stand up alone now.
★I force food down my throat because I am never actually hungry, but I know I need to eat a high calorie diet!
★I have break downs and scream at the top of my lungs. Of course, forcing a new coughing fit, when I just don't understand life.
★I sit in the shower for hours the night after getting out of the hospital and cry, scrub the nastiness off, the sticky gray stuff left from adhesive tapes. The salt washing over my head from sweat/salting for so long without showering because I am too weak. Needing to have my fiancé in yelling distance in case I can't breathe or need help up. I look at it as a time for me to reflect, look at another fight with this evil disease, that I have won!!
★I sit and think of all the things I want to do. The crazy off the wall things that everyone says "really, that's what you want to do now". When jumping from trade to trade. All the things I can do. There is not a single thing I have set out to do that I have not accomplished! Believe you me, I will keep rolling out my crazy pipe dreams because I am a dreamer.
★Cystic Fibrosis can not take who I am away from me. It can take over my lungs, it can take control of my digestive system and my ability to have babies. But what it cannot do has changed me. Bring me down or make me feel like I am a Cystic Fibrosis Patient and that is all that defines me...NO..I define Cystic Fibrosis Not the other way around.
★I cry when I look up at the stars and see all the things I could have done if it weren't for my lungs. Then I cry for the amazing things I have done.
★I force food down my throat because I am never actually hungry, but I know I need to eat a high calorie diet!
★I have break downs and scream at the top of my lungs. Of course, forcing a new coughing fit, when I just don't understand life.
★I sit in the shower for hours the night after getting out of the hospital and cry, scrub the nastiness off, the sticky gray stuff left from adhesive tapes. The salt washing over my head from sweat/salting for so long without showering because I am too weak. Needing to have my fiancé in yelling distance in case I can't breathe or need help up. I look at it as a time for me to reflect, look at another fight with this evil disease, that I have won!!
★I sit and think of all the things I want to do. The crazy off the wall things that everyone says "really, that's what you want to do now". When jumping from trade to trade. All the things I can do. There is not a single thing I have set out to do that I have not accomplished! Believe you me, I will keep rolling out my crazy pipe dreams because I am a dreamer.
★Cystic Fibrosis can not take who I am away from me. It can take over my lungs, it can take control of my digestive system and my ability to have babies. But what it cannot do has changed me. Bring me down or make me feel like I am a Cystic Fibrosis Patient and that is all that defines me...NO..I define Cystic Fibrosis Not the other way around.
★I cry when I look up at the stars and see all the things I could have done if it weren't for my lungs. Then I cry for the amazing things I have done.
Reflecting is something that is needed. We all break down. We all have moments of weakness. It is those moments of strength that makes us who we are. Those things that keep us going and doing the things we want to do.
♡When you live your life, live. Go fast, hard, strong, and crazy! Then you will value your life much more! It will all equal out and be perfect in the end!!
Smiling,
Sandi
Ashley and Myself are freezing cold for the 3rd annual Yougen Memorial Toys for Tots Poker Run! Dec 7th, 2013 30° outside. FUCF