If, President Trump, I know here we go, decided to defund, Planned Parenthood it simply no longer has Government funding. THAT'S all! No federal funding will be going into Planned Parenthood, your funding however can!
He isn't going to banish the organization from the planet. He isn't going to find the Elder Wand and magically, Planned Parenthood is gone! That's not how it works.
For those who support, Planned Parenthood it's not the end of the world. I tell you, because I know. My disease, Cystic Fibrosis and the Cystic Fibrosis Foundation is also not federally funded by the US Government.
Roughly over a 100 Cystic Fibrosis patients die every year. With most of those numbers belonging to children under 18.
To most people that 100 plus people is a small number, but to us they are family and friends. They are bonds that no one else can form with us, because no one else understands what going through a disease like CF is like.
Those deaths are a small glimmer of hope inside of us that slowly fades away. The thought of a cure gets smaller and smaller inside our minds watching another Cystic die at the hands of a disease that is not funded by the Government. That way we can get the answers, lung transplants, and medications we need.
The Cyctis Fibrosis Foundation, understands these loses and is helping aid us with new medication and treatment research. Helping us with the costs of our medications a lot of us can't afford. Helping with pre-natal CF screenings and trying to make it a mandatory pregnancy screening for the disease. They help potential parents with information about testing for the CF gene. They are helping to ensure we have the proper information and resources for our disease. All of which they are NOT federally funded for.
We have to get funding through our own CF community. From people who want to see a cure. People who support the disease and those of us who fight with it daily. All while we petition the government over and over for funding and keep getting turned away year after year.
Our foundation and disease isn't effecting enough people in the eyes of the government to pay attention to it alone.
While you gather enough women around the US to fund planned parenthood on your own. Well enough for the next 4 years for that matter, a baby is being diagnosed with Cystic Fibrosis. Teens are being hospitalized missing out on critical developmental and social events in their lives. Twenty year olds who have fought their entire short lives to make it to 20 are being told they are dying with smiles on their faces. Two CF patients, that I know of, died on Saturday due to complications of Cystic Fibrosis. Both were under 30.
We are not walking around throwing fits, littering in the streets, wearing lung or Pancreas hats. We are writing to our congressman. We are taking bills to capital hill. We are holding indivual CF walks to RAISE money on our own to help fund the CFF and further research. We are hosting gallas and making something happen for ONE cause. Life!
With government funding for both CF and the CFF so many things could be possible, but right now we don't hate it.
We didn't chose to be born sick. Our genetics betrayed us, and we are fighting against it, without federal funding for our organization!
If we can do it, trust me, Planned Parenthood is fully capable of operating without federal funding!
This I promise you,
Sandi
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